Fertility information: Giving young cancer patients the chance to have children

by | Oct 24, 2019 | Female Fertility Preservation, UK Fertility News

Young people with cancer are potentially being robbed of the ability to have children as important information around fertility is not being communicated at the earliest opportunity says the cancer charity, Teenage Cancer Trust
Source: https://www.openaccessgovernment.org/cancer-young-patients-have-children/76485/

Teenage Cancer Trust calls for:

  • Free & fair access to fertility treatment
  • Full, frank fertility & sexual health discussions for all young people with cancer
  • Mental health support before, during and after treatment 

This, in addition, to delay in diagnosis and access to mental health support, are among the issues identified in a response submitted to the Government’s Advancing our health: prevention in the 2020 consultation.

For approximately 15% of young people with cancer there is a high risk of future fertility problems, and although many health professionals provide detailed information about the impact of treatment on fertility at diagnosis, 29% of young people being treated for cancer do not receive this information*.

 

Louise Soanes, Director of Services at Teenage Cancer Trust said:

“Teenagers and young adults who have lived through cancer have had so much taken away from them already. They should not lose the ability to start a family of their own too.

“We found that over a quarter (29%) of young people who were treated for cancer did not have a conversation about fertility with a health professional, while 44% of young people were not satisfied with the information they were given. This is not acceptable and that’s why we’re calling for every young person with cancer to have their fertility options explained to them by a health professional.

“Coupled with this, there needs to be fully funded access to cryopreservation (egg and sperm freezing) along with access to fertility services in accordance with NICE guidelines. Young people tell us that this isn’t always happening.”

Responding to the Government consultation, Teenage Cancer Trust highlights some of the key challenges faced by young people undergoing cancer treatment and calls for:

  • Every young person with cancer must have their fertility options explained to them by a health professional;
  • Fully funded access to cryopreservation (egg and sperm freezing) along with access to fertility services in accordance with *NICE guidelines;
  • Health professionals to talk to every young person about the impact cancer treatment can have on sexual activity;
  • NHS England to endorse and support the roll-out of Teenage Cancer Trusts IAM Portal to support and improve teenage and young adult mental health;
  • An extension to the human papillomavirus (HPV) vaccination programme to allow all 13 to 24-year-old teenage boys and young men access to it via the NHS;
  • The Department of Health and Social Care to prioritise funding research into why geographical inequalities exist in cancer care;
  • Education provision for young people around how to maintain a healthy weight so as to reduce the risk of cancer developing in adulthood.

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